Spinal Muscular Atrophy Foundation | Foundation Profile

GrantBay analyzes IRS Form 990-PF data to help grant seekers find fit funders like Spinal Muscular Atrophy Foundation. Data shown is extracted from Form 990-PF filings.

EIN: 01-0759380

Foundation Overview

Based in Jackson, WY, Spinal Muscular Atrophy Foundation has awarded 42 grants totaling $7,653,134 to organizations in Massachusetts, New York and 5 other states across the US. Individual grants range from $12,726 to $886,832, with a median award of $123,202.5.

Latest Tax Year
2023
Total Giving (all years)
$7,653,134
Total Assets
$33,691,989
Median Grant (all grants)
$123,202.5

Latest Form 990-PF Snapshot

Total Grants
9
Median Grant
$138,000
% Median Grant Decline
-79% (vs previous year)
Data extracted from IRS Form 990-PF filings. Last filing year: February 2026

Foundation Intelligence

Advanced analytics and strategic insights to help nonprofit organizations assess grant opportunities and optimize their application strategies

New Applicant Friendliness
Closed Network: 11%

1 of 9 recipients (11%) were new grantees. Foundation maintains tight relationships with established partners. New applicants rarely succeed without insider connections.

Geographic Focus
California

40% of grants are awarded in California, with additional funding distributed across 6 other locations. The foundation balances regional focus with broader geographic diversity. Within California, funding concentrates in Palo Alto (82%), Los Angeles (18%).

Funding Trajectory
-14%

Declining funding trend with 14% decrease over 7 years may indicate reduced grant opportunities or shifting foundation priorities. This trajectory suggests more competitive application environment.

Program Areas
Healthcare + 4 others

Diversified giving across multiple program areas with primary emphasis on healthcare (30%). This broad approach suggests openness to various causes and innovative cross-sector solutions.

Where is The Money Going?

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Grants & Funding

Analyzing past grantees provides valuable insights into Spinal Muscular Atrophy Foundation's funding preferences, organizational priorities, and grant making patterns. This historical data helps potential applicants understand the foundation's strategic focus and identify successful funding approaches.

Name Amount Location Purpose Year
Stanford University $162,935 Palo Alto, CA, US Oversight On The Stanford-sma Foundation Regenerative Medicine Program Projects 2023
Stanford University $69,000 Palo Alto, CA, US Development Of Noninvasive Gene Editing Methods 2023
Stanford University $138,000 Palo Alto, CA, US Generation Of Hindbrain Motor Neurons From Pluripotent Cells 2023
Stanford University $138,000 Palo Alto, CA, US Characterization Of Muscle In Sma Patients 2023
Stanford University $207,000 Palo Alto, CA, US Analysis Of Gene Expression And Splicing In Sma Patient Cells 2023
Stanford University $86,250 Palo Alto, CA, US Generation And Characterization Of Skeletal Muscle From Induced Pluripotent Stem Cells From Sma Patients 2023
Stanford University $138,000 Palo Alto, CA, US Generation Of Spinal Cord Motor Neurons From Pluripotent Cells 2023
Stanford University $117,494 Palo Alto, CA, US Characterization Of Neuron-glial-immune Cell Interactions In Sma 2023
University Of Florida $98,953 Gainesville, FL, US Characterization Of Muscle Environment In Sma 2023
Stanford University $653,689 Palo Alto, CA, US Modailty-agnostic Drug Prototyping Research Projects 2022
Children's Hospital Of Boston $53,154 Boston, MA, US To Support Pncr Research 2021
Columbia University $79,047 New York, NY, US To Support Pncr Research 2021
University Of Rochester $52,940 Rochester, NY, US To Support Pncr Research 2021
Stanford University $412,500 Palo Alto, CA, US Modailty-agnostic Drug Prototyping Research Projects 2021
Children's Hospital Of Boston $88,626 Boston, MA, US To Support Pncr Research 2020
Children's Hospital Of Philadelphia $12,726 Philadelphia, PA, US To Support Pncr Research 2020
Stanford University $75,000 Palo Alto, CA, US To Support Pncr Research 2020
Columbia University $150,000 New York, NY, US To Support Pncr Research 2020
The Trustees Of Columbia University $886,832 New York, NY, US Advancing Development Of Therapeutics For Sma 2018
University Of Southern California $336,252 Los Angeles, CA, US Examination Of Neuromuscular Junctions In Sma Mice 2018
Children's Hospital Of Boston $245,771 Boston, MA, US Advancing Development Of Therapeutics For Sma 2018
John Hopkins University $229,777 Baltimore, MD, US Pathology Of Sma 2018
Stanford University $224,927 Palo Alto, CA, US Clinical Reseach Project 2018
Children's Hospital Of Philadelphia $106,664 Philadelphia, PA, US Advancing Development Of Therapeutics For Sma 2018
University Of Rochester $98,476 Rochester, NY, US Advancing Development Of Therapeutics For Sma 2018
Beth Israel Deaconess Medical Center $33,106 Boston, MA, US Advancing Development Of Therapeutics For Sma 2018
Beth Israel Deaconess Medical Center $16,552 Boston, MA, US Advancing Development Of Therapeutics For Sma. 2017
Children's Hospital Of Boston $217,273 Boston, MA, US Advancing Development Of Therapeutics For Sma. 2017
Children's Hospital Of Philadelphia $72,002 Philadelphia, PA, US Advancing Development Of Therapeutics For Sma. 2017
Stanford University $112,500 Palo Alto, CA, US Clinical Reseach Project 2017
The Trustees Of Columbia University $312,000 New York, NY, US Development Of An Array For Improvement Of Motor Outcome In Mouse Model Of Sma Following In Vivo Tre 2017
The Trustees Of Columbia University $276,569 New York, NY, US Advancing Development Of Therapeutics For Sma. 2017
University Of Rochester $128,911 Rochester, NY, US Advancing Development Of Therapeutics For Sma. 2017
University Of Southern California $282,810 Los Angeles, CA, US Examination Of Neuromuscular Junctions In Sma Mice 2017
The Trustees Of Columbia University $802,984 New York, NY, US Advancing Development Of Therapeutics For Sma 2016
University Of Southern California $83,929 Los Angeles, CA, US Examination Of Neuromuscular Junctions In Sma Mice 2016
John Hopkins Univeristy School Of Medicine $130,698 Baltimore, MD, US Pathology Of Sma 2016
Harvard University $150,000 Cambridge, MA, US Translational Research In Sma 2016
Beth Israel Deaconess Medical Center $20,000 Boston, MA, US Measuring Disease Progression In Spinal Muscular Atrophy Through The Use Of Electrical Impedance Myography 2016
Jackson Laboratory $55,470 Bar Harbor, ME, US Development And Characterization Of Mouse Models For Sma 2016
University Of Pennsylvania $21,317 Philadelphia, PA, US Investigation Into Therapeutic Aso 2016
Stanford Univerisity School Of Medicine $75,000 Palo Alto, CA, US Clinical Research Project 2016

Foundations Similar to Spinal Muscular Atrophy Foundation

Discover 5 foundations with comparable assets ($33,628,339-$33,831,379), similar grant patterns, and geographic focus in WY that may also align with your organization's funding needs and grant seeking strategy.

Foundation Name Total Assets Typical Grant Size Service Area Similarity Match

EIN: 52-7195462 | 7 grants awarded
$33,699,267
(≈ Similar)
$239,897
median grant
Baltimore, MD
70%
Good match

EIN: 47-3402778 | 39 grants awarded
$33,655,980
(≈ Similar)
$70,000
median grant
Bridgeville, PA
70%
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EIN: 25-6667093 | 98 grants awarded
$33,628,339
(≈ Similar)
$132,625
median grant
Doylestown, PA
70%
Good match

EIN: 11-3551993 | 105 grants awarded
$33,759,939
(≈ Similar)
$100,000
median grant
Remsenburg, NY
70%
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EIN: 54-6034453 | 45 grants awarded
$33,831,379
(≈ Similar)
$244,547
median grant
Dallas, TX
70%
Good match

Contact Information

Official contact details for Spinal Muscular Atrophy Foundation as registered with the IRS. These details are essential for grant applications, correspondence, and due diligence processes.

EIN 01-0759380
Website http://www.smafoundation.org
Address 888 7TH AVE STE 400 New York, NY 10106-0401

Key People (11)

Board members, trustees, and key staff who oversee Spinal Muscular Atrophy Foundation's grant making decisions and strategic direction. Understanding leadership composition can provide insights into foundation priorities and potential networking opportunities.

Board Chairman Dinakar Singh
Director Douglas Cole Md
Director Gerald Fischbach Md
Director Andrew Knight
Director Jonathan Leff

Forms 990-PF

IRS Form 990-PF filings provide comprehensive financial information, grant details, and operational data. These documents are essential resources for understanding foundation capacity, giving patterns, and strategic priorities.

Form 990-PF Research Tips
  • Review Part XV for detailed grant recipient information and funding purposes
  • Check Part I for total assets, annual giving amounts, and payout requirements
  • Examine Part VIII for key personnel compensation and board structure
  • Look for trends across multiple years to understand giving patterns

About This Foundation Profile

This comprehensive foundation profile for Spinal Muscular Atrophy Foundation is powered by Grant Bay's advanced foundation research platform. Our system analyzes IRS Form 990-PF filings, grant histories, and philanthropic patterns to provide nonprofit organizations with actionable intelligence for grant seeking success.

Data Sources & Accuracy

All information is derived from official IRS filings and public records. Grant Bay processes thousands of Form 990-PF documents to extract grant details, financial data, and organizational information. Data accuracy depends on foundation reporting quality and IRS filing completeness.

Research Applications

Use this profile for prospect research, grant strategy development, application preparation, and relationship building. Combine this data with additional research on foundation priorities, application processes, and board member backgrounds for comprehensive grant seeking strategies.

Data Currency: Last updated February 2026 based on IRS Form 990-PF filings. Foundation information reflects most recent available tax year data.